Rare Disease Reporting Fellowship & Grants 2026

Contexte

As biotechnology continues its march toward revolutionary treatments and cures for complex medical conditions, the daily realities for people living with rare diseases and their families can dampen hope. Worldwide, the relentless cycle of caregiving, stress and hypervigilance only deepens the challenges for the 300 million people living with one of more than 7,000 confirmed rare diseases. While advocacy and research merge to yield solutions, the need for increased visibility about rare diseases is becoming more urgent. In many countries, healthcare infrastructure and policies must be strengthened to address persistent gaps in access and knowledge.

To help international journalists amplify these issues, the National Press Foundation is providing a week of free online training for professional journalists in any medium. This fifth in a series of journalism fellowships, made possible with support from Fondation Ipsen, will consist of on-the-record briefings and question-and-answer sessions with top experts, including topics such as rare disease research on the African continent, AI-driven drug development, childhood genetic testing and screening, and the need for more inclusive clinical trials. Journalists will also hear from leaders of global patient advocacy groups and veteran journalists in the field.

Missions et responsabilités

• Attend all training sessions, which are mandatory and will run from 8 a.m. to 12 p.m. ET, Nov. 16-20.
• Participate in on-the-record briefings and question-and-answer sessions with top experts, global patient advocacy group leaders, and veteran journalists.
• Produce and publish a reporting work on the topic no later than March 1, 2027 (for grant recipients).

Profil recherché

• Open to professional journalists based in any country.
• Journalists may work in any medium (print, broadcast, online, social) and any language.
• Must have fluency in English, as the training will be conducted in English.
• Attendance at all sessions is mandatory (Nov. 16-20, 8 a.m. to 12 p.m. ET).

Conditions et avantages

• One week of free online training provided by the National Press Foundation.
• All accepted fellows will receive the training.
• Reporting grant of up to $2,000 for fellows who require and qualify: $1,000 upon completion of the training and another $1,000 upon submission of their work.
• Work must be published no later than March 1, 2027.

Dossier de candidature

• Application form.
• For employed journalists: a letter of support from their editor, including a commitment to allow four hours off work each day from Nov. 16-20 to accommodate the fellowship hours.
• For freelance journalists: a letter from an editor indicating an interest in publishing their work on this topic.

Comment postuler

The application deadline is 11:59 p.m. ET Oct. 22, 2026. Interested candidates should submit their application online.

Click here to apply: Click here to apply

For more information, visit Rare Disease Reporting Fellowship and Grants.